Caregivers – a world of difference

If you’re new to cancer or serious illness you may hear a new term, caregiver.  Caregivers can come in many forms.  They can be a friend, a spouse, a parent and even a child.

My primary caregivers were my husband and my daughter.  They were both amazing.  They helped me with anything and everything from sharing kind words to bringing me water to cooking meals and helping me out of bed when I needed it.    Besides helping me with the daily tasks my husband went with me to doctor visits and chemo appointments.  He helped make me as comfortable as possible during my treatments and gave me words of encouragement that kept me going, he was my cheerleader!

My daughter was eight years old when I was first diagnosed.  I wasn’t sure how she would respond but she blew me away.  She did have a few moments where she wondered what it meant for her to have a mom battling breast cancer but her primary concern was for me.  She worried for my comfort, she made sure I had enough to drink, she tried to find something for me to watch on TV.   She helped me pick out clothes and put on make-up to help conceal the yellow skin and missing hair.  But what helped me the most was the love she showered on me each and every day.  It helped me remember what I was fighting for.  I was fighting to be her mother,  I was fighting to see her grow up, graduate high school and college.  I was fighting to be there for her when she needed me.

I know not everyone is lucky enough to have a caregiver, especially not two.  But if you know someone that is fighting a serious illness, ask yourself; what simple, little thing can you do to make life just a little more pleasant for them?

Resources – too many to count

There are so many sources of information for cancer patients it’s hard to chose just one to recommend.  A few of the resources I found helpful were the American Cancer Society, National Cancer Institute, the hospital where I had surgery, my cancer center where I was being treated, and a program called Bag It! .

The American Cancer Society was helpful in providing the opportunity to call and discuss my diagnosis and possible treatment.  I was able to compare what my doctors were recommending and what the national standard of care was.  It was very reassuring to know I was getting the recommended treatment for my type and stage of cancer.  I also enjoy their annual community event, Relay for Life.  I felt honored and understood at the event and they also showed appreciation for my Care Givers.  I liked that my whole family could participate and that it gave them an outlet for their emotions.  The American Cancer Society is a volunteer organization and their services pop-up almost everywhere.   An amazing organization!  Find them at Cancer.org

The National Cancer Institute is also a great source for information about all types of cancer.  You can also find out about the latest clinical trials, cancer statistics, research and funding and just about anything you’d like to know about cancer.  I found their material very comprehensive, it helped me to understand my types of cancer and how they affected my body.  I also found it very comforting that our government was so involved with cancer research.  I think we could use more funding in research, I’d love to find a real cure before my daughter may be faced with it, but I was glad to see more involvement than I knew about.  Visit their site at Cancer.gov.

If you require surgery your hospital will likely have information for you regarding your cancer.  They might also have other items made by volunteers that may help you.  My hospital gave me a little apron to hold my drainage bottles.  This came in very handy after surgery, I wore the first one out!

DrainApron

My cancer center had printed material too (you will receive more brochures and pamphlets than you can imagine).  More valuable though were the donations and free classes that were offered from various volunteer groups including the American Cancer Society.  Look Good, Feel Better is a class they offer to chemo patients.  You’re given a small makeup bag and tips for applying make up when you’re showing the side affects of chemo such as hair loss and yellowish skin tone.   They also offer wigs to patients that want one.

Another source of information came from a friend.  She gave me a bag of materials from a group called BAG IT!  It was a bag filled with pamphlets and a notebook to organize and document your treatments and doctor visits.  For more information on the program visit www.bagit4u.org.

These are just a few of the many sources of information available to cancer patients.   Look around and find the sources that help you the most.